Home!!!

It’s official! We are going home today! 

Last night we had one more lab draw to check the medication levels in our blood. One of the seizure meds in particular can cause shakiness if levels are too high. So they wanted to verify we were at the appropriate dosages and the medication wasn’t the problem. And this morning, results showed he was just about in the target ranges. So no adjustments will be needed at this time. 

Weston still does have his NG tube in place. But I am optimistic it won’t be for very long at all. This morning, Weston ate his full breakfast- eggs, fruit, string cheese, and juice. Tomorrow we have a telehealth (virtual) appointment with the gastroenterologists to determine when the tube can be removed. 

So now for the four and a half hour drive home. Can’t wait to be home!! 

Thank you again for all of the prayers, the support, encouragements, and even the care packages (I have such great sisters!). God truly has worked a miracle in Weston and through these doctors. And I could not be more thankful and amazed! From what the prognosis was just over a week ago, I can hardly believe we are at the point we are now. I realize we still have a long road ahead of us. And we may never find ourselves totally free from seizures, but I know God will always be there to help us through every step. And to the glory of His name every time. Thank you Lord! 

-Julie

PS Thank you mom for all of your help and support this week! Making sure I ate, helping to run errands, spending time with Weston and me, helping give me time to get work done, and overall, keeping us sane- I can’t thank you enough. It was such a blessing to have you with us. And thank you husband for holding down the fort at home. You truly are my best friend and partner through everything. And I couldn’t do any of this without you. I love you! 

Comments

  1. UnknownFebruary 9, 2021 at 5:58 PM

    God's love and mercy is amazing..Just continue trust God ans stand firm with your faith, as His words says in Psalm 91, Because he loves me, says the Lord, I will save him for he Acknowledge me. I will deliver him, I will be with him in times of troubles, I will honor him, with long life will i satisfy him..
    We will continue praying for Weston..Godbless!

    ReplyDelete

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